Recruiting for an Ehlers-Danlos Syndrome aromatherapy study
Shannon Becker, PhD RA is recruiting participants experiencing joint hypermobility for case studies exploring aromatherapy as a adjunct therapy. The form can be found HERE, and all collected information will be kept confidential.
This project is funded by a grant through the Alliance of International Aromatherapists.
We are collecting survey information from all who are experiencing joint hypermobility, however the study is specifically interested in those diagnosed (genetic or clinical diagnoses made by MDs, ODs, or comparable medical profession) with the classical and hypermobile forms of EDS. Study participants will be contacted if they are eligible for the study from the survey provided data.
Please see a newer blog post about the study HERE.
Aromatherapeutics are a viable option for Ehlers-Danlos Syndrome symptom management
According to the National Institutes of Health, “pain affects more Americans than diabetes, heart disease and cancer combined”. Uncontrolled pain is debilitating, and can lead to secondary conditions such as anxiety, depression, and sleep disruption. Ehlers-Danlos Syndrome (EDS) causes joint dislocations, can affect internal organs, and leads to significant pain. The current (inadequate) methods for relieving EDS-related pain are limited to opioid medications and management of dislocations. Many EDS sufferers are unable to function in normal life, leading to full medical disability status. EDS sufferers are likely to experience anxiety and depression, and management of these secondary conditions is important for quality of life.
Aromatherapy may be an effective and safe method of controlling the pain and inflammation experienced by EDS sufferers. Studies showing the ability of essential oil and aromatic extracts to interact with pain-related cell receptors and nociceptors suggest that essential oils can directly reduce pain. In addition, inhalation of specific essential oils has been shown to relieve stress and anxiety. Identifying an aromatherapy protocol for EDS-related pain and anxiety will increase quality of life.